Pierre Fabre

Message from Sponsor

Better care for your patients is now at your fingertips with the digitalization of the Hemangeol Caregiver Guide in a simple to use app. Download now (add link for download here) in your app store using code IH2024 to preview four key features of the app:

-Team Management: capacity to include the whole family care team

-Carer Guide: Answers frequently asked questions (FAQ) related to treatment administration, risk reduction and other important safety information

-Treatment planning: schedule and assign doses

Message from Sponsor

Background:

Pierre Fabre in currently recruiting for an open-label Phase 2 trial to investigate the efficacy and the safety of intra-amniotic administration of ER004 in male subjects with X-linked hypohidrotic ectodermal dysplasia (XLHED). Learn more about the study by visiting our provider website at https://pro.edelifeclinicaltrial.com/.

A peer-reviewed publication documenting findings to date is already available here A Causal Treatment for X-Linked Hypohidrotic Ectodermal Dysplasia: Long-Term Results of Short-Term Perinatal Ectodysplasin A1 Replacement .

CONGRATULATIONS to our first EDVYCE survey prize winners!

Pierre Fabre selected @terikahn83 for the top prize of a $100 Amazon gift card!

The remaining $10 Amazon gift cards were selected at random from among those responding, and will be awarded to the following 5 survey responders:

@Sarah Asch

@Mary Wu Chang

@Candrice Heath

Pierre Fabre would like to welcome you to our Edyvce channel.

Access valuable resources at your fingertips - from publications to product information and contact with medical affairs or your local Pierre Fabre representative just a click away.

Let’s collaborate to increase awareness on the importance of early referral in IH and increased use of IHReS scoring tool.

Be a part of increasing recruitment for the first potential treatment to prevent or at least significantly reduce the severity of some Ectodermal Dysplasia (XLHED) symptoms.

Connect specialists in the Ectodermal Dysplasia space to EDELIFE and let's advocate for the rare disease community!  

Please help support EDVYCE by answering this SPONSOR SURVEY QUESTION.

PRIZES:

The most thoughtful responses as judged by the sponsor will receive a US-based Amazon gift card of $100 (one prize).

All other respondents will be entered in a raffle to receive one of 5 additional $10 US-based Amazon gift cards.

Prizes will be awarded within 2-4 weeks following the deadline date.